| Description |
919 pages ; 25 cm |
| Series |
Discussion paper / Australian Law Reform Commission ; DP 66 |
|
Discussion paper (Australian Law Reform Commission) ; 66
|
| Contents |
1. Introduction into the inquiry -- 2. Planning for the future -- 3. A standing advisory body on human genetics -- 4. Genetic testing -- 5. Regulating access to genetic testing -- 6. Coming to terms with genetic information -- 7. Information and health privacy law -- 8. Anti-discimination law -- 9. Ethical considerations -- 10. The regulation of human genetic research -- 11. Enforcing compliance with the national statement --12. Human genetic research and consent -- 13. Encouraging best practice in human genetic research -- 14. Strengthening review by HRECs -- 15. Human genetic research databases -- 16. Human tissue collections -- 17. Ownership of samples and the human tissue acts -- 18. Health professionals and family genetic information -- 19. Genetic registers and family genetic information --20. Genetic counselling and medical education -- 21. Population genetic screening -- 22. Personal insurance in Australia -- 23. The use of genetic information in insurance -- 24. Genetic discrimination in insurance -- 25. Insurance and genetic privacy -- 26. The use of genetic information in employment -- 27. Genetic discrimination in employment -- 28. Inherent requirements of the job and related issues -- 29. Occupational health and safety -- 30. Employment and genetic privacy -- 31. DNA parentage testing -- 32. Genetic information and aboriginality -- 33. Immigration -- 34. Forensic use of genetic information -- 35. Harmonisation of forensic procedures legislation --36. Criminal investigation -- 37. Criminal proceedings -- 38. Post-conviction use of genetic information -- 39. Civil proceedings -- Appendix A. NSW Newborn Screen Programme (Guthrie card) |
| Summary |
Considers, with respect to human genetic samples & information, how best to protect privacy and ensure the highest ethical standards in research and practice |
| Analysis |
Human genetics --Moral and ethical aspects |
|
Privacy, Right of--Australia |
|
Human genetics |
|
Human genetics--Law and legislation--Australia |
|
Genetic resources |
|
Genetic disorders |
|
Medical records |
|
Privacy |
|
Legislation |
|
Medical research |
|
Discrimination |
|
Databases |
|
Federal issue |
|
State issue |
| Notes |
Cover title |
|
"August 2002" |
|
"You are invited to provide a submission or comment on this Discussion Paper." |
| Bibliography |
Includes bibliographical references |
| Notes |
Also available online via the World Wide Web. Address as at 21 Oct. 2002: http://www.austlii.edu.au/au/other/alrc/publications/dp/66 |
|
Commonwealth of Australia 2002 |
| Subject |
Human genetics -- Law and legislation -- Australia.
|
|
Human genetics -- Moral and ethical aspects.
|
|
Privacy, Right of -- Australia.
|
|
Human genetics.
|
| Author |
Australian Law Reform Commission.
|
|
Australian Health Ethics Committee
|
| LC no. |
00002494 |
| ISBN |
0642502048 |
|
