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E-book

Title Informal caregivers : from hidden heroes to integral part of care / Andreas Charalambous, editor
Published Cham : Springer, [2023]
©2023

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Description 1 online resource (vii, 219 pages) : illustrations (some color)
Contents Intro -- Forward -- Contents -- Caregiving and Caregivers: Concepts, Caregiving Models, and Systems -- 1 Introduction -- 2 The Concept of Caregiving -- 3 What Is an Informal Caregiver or a Family Caregiver? -- 4 The Scale of Caregiving -- 5 The Financial Impact of Caregiving -- 6 Informal Caregiving During the COVID-19 Pandemic -- 7 Family Caregiving Models -- 8 Tasks Performed by Informal Caregivers -- 9 Conclusion -- References -- Caregiving Burden and Other Psychosocial Considerations -- 1 Introduction -- 2 Cancer Caregivership Burden -- 2.1 Physical and Sleep Burden
2.2 Psychosocial and Spiritual Burden -- 2.3 Financial Burden and Caregiver Guilt -- 2.4 Long-Term and Quality-of-Life-Related Burden -- 2.5 Bereavement Burden -- 3 Interventions for the Management of Caregivers' Burden -- 3.1 Good Examples -- 3.2 eHealth Options -- 3.3 Policy Action Needed -- 4 Conclusion and Outlook -- References -- Caregiving Within the Context of Elder Care -- 1 Introduction -- 2 Origins of Global Aging -- 2.1 Extension of Life Expectancy -- 2.2 The "Baby Boomer" Generation -- 2.3 The "Silver Tsunami" -- 3 Prominent Themes in Elder Caregiving
3.1 Caregiver Burden -- 3.2 Co-morbidity -- 3.3 Problematic Healthcare Navigation -- 3.4 Ageism -- 3.4.1 Choosing Geriatrics as a Specialty -- 4 Major Illnesses in the Elderly -- 4.1 Cancer -- 4.1.1 Distinguishing Characteristics -- 4.1.2 Themes in Elder Cancer Caregiving -- Fear -- New Caregiving Expectations -- 4.2 Dementia -- 4.2.1 Caregiver Characteristics -- 4.2.2 Emotional Sequelae -- 4.3 Heart Failure -- 4.3.1 The Female Caregiver Imperative -- 4.3.2 Demands Over Time -- 4.4 Stroke -- 5 10 Intervention Caveats and Advocacy Targets -- 6 Elder Caregiving Research
7 The Healthy Aging Agenda -- 8 Conclusion -- References -- Informal Caregivers in Care Efficiency -- 1 Introduction -- 2 The Concept of Efficiency -- 3 Efficiency in the Context of Cancer -- 4 Informal Caregivers as Means of Efficiency -- 4.1 Putting Patients at the Centre of the Care...and Delivering Care That Really Matters to Patients -- 4.2 Efficient Cancer Care Delivers the Best Possible Health Outcomes (e.g. Continuation of Care) -- 4.3 Efficient Cancer Care... with a Focus on What Really Matters to (Patients) and Society -- 5 Conclusion -- References
Caring for the Informal Carer: Coping in Caregiving -- 1 Introduction -- 2 Caring for the Carer: A Comprehensive Approach -- 3 Start by Carrying out a Holistic Carers Assessment -- 4 Self-Care for the Carer -- 5 Coping Strategies -- 5.1 Maximizing the Positives and Minimizing the Negatives -- 5.2 Information Seeking and Provision, Accepting Help from Others -- 5.3 Planning Ahead -- 6 Conclusion -- References -- Informal Caregivers and Health Literacy -- 1 Introducing Health Literacy and eHealth Literacy -- 1.1 eHealth Literacy -- 2 Health Literacy Levels Among Informal Caregivers
Summary This book builds on the current trends in informal caregivers role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle "outpatient before inpatient", the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers impact on patients outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.
Notes Online resource; title from PDF title page (SpringerLink, viewed January 19, 2023)
Subject Caregivers.
Medical care.
Caregivers
Caregivers -- trends
Patient Care
Caregivers
Medical care
Form Electronic book
Author Charalambous, Andreas (Of Cyprus University of Technology), editor.
ISBN 9783031167454
3031167457