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Book Cover
Book
Author Australian Law Reform Commission.

Title Protection of human genetic information : discussion paper / ALRC [Australian Law Reform Commission] [and] National Health & Medical Research Council Australian Health Ethics Committee
Published Sydney, NSW : Australian Law Reform Commission, 2002

Copies

Location Call no. Vol. Availability
 MELB  KL 176 Aus/Dpa  2002/66  AVAILABLE
Description 919 pages ; 25 cm
Series Discussion paper / Australian Law Reform Commission ; DP 66
Discussion paper (Australian Law Reform Commission) ; 66
Contents 1. Introduction into the inquiry -- 2. Planning for the future -- 3. A standing advisory body on human genetics -- 4. Genetic testing -- 5. Regulating access to genetic testing -- 6. Coming to terms with genetic information -- 7. Information and health privacy law -- 8. Anti-discimination law -- 9. Ethical considerations -- 10. The regulation of human genetic research -- 11. Enforcing compliance with the national statement --12. Human genetic research and consent -- 13. Encouraging best practice in human genetic research -- 14. Strengthening review by HRECs -- 15. Human genetic research databases -- 16. Human tissue collections -- 17. Ownership of samples and the human tissue acts -- 18. Health professionals and family genetic information -- 19. Genetic registers and family genetic information --20. Genetic counselling and medical education -- 21. Population genetic screening -- 22. Personal insurance in Australia -- 23. The use of genetic information in insurance -- 24. Genetic discrimination in insurance -- 25. Insurance and genetic privacy -- 26. The use of genetic information in employment -- 27. Genetic discrimination in employment -- 28. Inherent requirements of the job and related issues -- 29. Occupational health and safety -- 30. Employment and genetic privacy -- 31. DNA parentage testing -- 32. Genetic information and aboriginality -- 33. Immigration -- 34. Forensic use of genetic information -- 35. Harmonisation of forensic procedures legislation --36. Criminal investigation -- 37. Criminal proceedings -- 38. Post-conviction use of genetic information -- 39. Civil proceedings -- Appendix A. NSW Newborn Screen Programme (Guthrie card)
Summary Considers, with respect to human genetic samples & information, how best to protect privacy and ensure the highest ethical standards in research and practice
Analysis Human genetics --Moral and ethical aspects
Privacy, Right of--Australia
Human genetics
Human genetics--Law and legislation--Australia
Genetic resources
Genetic disorders
Medical records
Privacy
Legislation
Medical research
Discrimination
Databases
Federal issue
State issue
Notes Cover title
"August 2002"
"You are invited to provide a submission or comment on this Discussion Paper."
Bibliography Includes bibliographical references
Notes Also available online via the World Wide Web. Address as at 21 Oct. 2002: http://www.austlii.edu.au/au/other/alrc/publications/dp/66
Commonwealth of Australia 2002
Subject Human genetics -- Law and legislation -- Australia.
Human genetics -- Moral and ethical aspects.
Privacy, Right of -- Australia.
Human genetics.
Author Australian Law Reform Commission.
Australian Health Ethics Committee
LC no. 00002494
ISBN 0642502048