| Description |
x, 225 pages ; 23 cm |
| Contents |
Prologue : their story : 'no-one ever asked about me before...' -- 1. Caring and working as work-home conflict -- 2. A useful research design -- 3. Disconnected and doing it all -- 4. Unacknowledged grief -- 5. Cruelty and indifference -- 6. Clayton's support -- 7. Working and caring -- 8. Survival, compassion and action -- Epilogue : creating a new story? -- Vignette 1. Support and other assistance -- Vignette 2. Cruelty, thoughtlessness, managerialism -- Vignette 3. Emotions in the workplace -- Vignette 4. Relationships -- Vignette 5. Feeling different, alone -- Vignette 6. Financial assistance -- Vignette 7. Disclosure -- Vignette 8. Career, promotions, opportunities -- Vignette 9. Work flexibility -- Vignette 10. Childcare concerns -- Vignette 11. Coping -- Vignette 12. Fear and grief -- Vignette 13. Discrimination (because of your child) -- Vignette 14. Bullying (made worse because of your child) |
| Summary |
"This qualitative research highlights an important (but neglected) work and family issue - the experiences of full-time workers who also care for a child suffering from chronic illness or disability. The women in this study share a sense of disconnection from those around them because of the extreme responsibility of being the primary (sometimes the sole) carer for the child, and because they suffer from an ongoing and unacknowledged grief, and because of the insensitivity or cruelty of those around them, including their workplace colleagues. The women also report on their approaches to survival, at work and at home, and share uplifting stories of kindness and resilience in the face of sometimes overwhelming challenges. The stories are presented through narrative explorations which include poems, interviews, fictional diary entries and constructed vignettes |
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Students, researchers and professionals in health care management, gender studies, social policy and the sociology of the family will find this a stimulating and disturbing resource."--BOOK JACKET |
| Bibliography |
Includes bibliographical references (pages 203-221) and index |
| Subject |
Chronically ill children -- Medical care.
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Chronically ill children -- Care.
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Sick children -- Care.
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| LC no. |
2005056597 |
| ISBN |
1403997675 (hbk.) |
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