| Description |
1 online resource (159 pages) : illustrations |
| Contents |
Human genetic research databases -- Establishments of an HGRD -- Data and sample collection and management -- Database management and governance -- Conclusions |
| Summary |
Large-scale study of populations may contribute significantly to sciences understanding of the complex multi-factorial basis of disease and to improvements in prevention, detection, diagnosis, treatment and cure. This book summarizes the proceedings of a conference on human genetic research databases. It examines what they are and provides a number of examples. It looks at how they have been established, governed, and funded, and how they are managed and commercialized, exploring what the policy implications are for governments.--Publisher's description |
| Notes |
A report written by Christina Sampogna of the OECD Biotechnology Division, drawing upon papers presented at the Workshop on Human Genetic Research Databases--Issues of Privacy and Security, organized by the OECD Directorate for Science, Technology and Industry, and held in Tokyo, Feb. 26-27, 2004. The report includes additional research and is up to date as of August 2006 |
| Bibliography |
Includes bibliographical references (pages 153-159) |
| Notes |
In English; summary also in French |
|
Description based on print version record |
| Subject |
Human genetics -- Databases -- Law and legislation -- Congresses.
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|
Human genetics -- Databases -- Moral and ethical aspects -- Congresses.
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| Genre/Form |
Conference papers and proceedings.
|
| Form |
Electronic book
|
| Author |
Sampogna, Christina.
|
|
Organisation for Economic Co-operation and Development.
|
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Organisation for Economic Co-operation and Development. Directorate for Science, Technology, and Industry.
|
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Workshop on Human Genetic Research Databases--Issues of Privacy and Security (2004 : Tokyo, Japan)
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| ISBN |
9264028528 |
|
9264028536 (electronic bk.) |
|
9789264028524 |
|
9789264028531 (electronic bk.) |
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