Introduction -- Selected existing genetic database : distinctive features, ethical problems and the public debate -- The ethical debate : principles, values and interests : the ethical foundations of guidelines -- Selected issues of consensus and of controversy -- Ethical issues of human genetic databases and the future
Summary
This book compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, policy-makers and researchers in the field of medical ethics
Bibliography
Includes bibliographical references (pages 257-299) and index
