Title Genetic Privacy : an Evaluation of the Ethical and Legal Landscape / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho

Published London : Imperial College Press, 2013

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Description 1 online resource Contents The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What -- if anything -- is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon Summary Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concepts such as notions of what constitute the personal, the context of privacy, the significance and impact of the relational interests of others who may share the same genetic inheritance, and mechanisms for the protection of privacy (as well as of their limitations), among others. More specifically, the discussions in this volume encourages us to think broadly about privacy, as encompassing values that are entailed in the sociality of context and of relations, and also as freedom from illegitimate and excessive surveillance. A long-standing question that continues to challenge us is whether genetic information should be regarded as exceptional, as it is often perceived. A conclusion that could be derived from this volume is that while genetic information may be significant, it is not exceptionally so. The work presented in this volume underlines the continuing and growing relevance of notions of privacy to genomic science, and the need to take ownership of a genetic privacy for the future through broad, rigorous and open discussion. Contributors: Alastair V. Campbell, Benjamin Capps, Jacqueline J.L. Chin, Oi Lian Kon, Kenji Matsui, Thomas H. Murray, Nazirudin Mohd Nasir, Dianne Nicol, Anh Tuan Nuyen, Onora O'Neill, Margaret Otlowski, Yvette van der Eijk, Chunshui Wang, Ross S. White Bibliography Includes bibliographical references and index Notes Print version record Subject Human genetics -- Moral and ethical aspects. Bioethics. Diagnostic services. Genetics -- Technique. Confidential communications. Civil rights. Humanities. Diagnosis. National health services. Social psychology. Human rights. Social control. Medical care. Sociology. Social sciences. Genetic screening. Morals Diagnostic Services Genetic Techniques Confidentiality Genetic Services Diagnostic Techniques and Procedures Civil Rights Preventive Health Services Patient Rights Investigative Techniques Humanities Diagnosis Health Services Psychology, Social Behavior and Behavior Mechanisms Community Health Services Human Rights Analytical, Diagnostic and Therapeutic Techniques and Equipment Social Control, Formal Health Care Facilities, Manpower, and Services Psychiatry and Psychology Health Care Economics and Organizations Delivery of Health Care Sociology Social Sciences Anthropology, Education, Sociology and Social Phenomena Genetic Privacy -- ethics Privacy Bioethical Issues Jurisprudence Genetic Privacy Genetic Testing Ethics Genetic Privacy -- legislation & jurisprudence Genetic Testing -- ethics Patient Care civil rights. humanities. diagnosis. social psychology. sociology. social sciences. MEDICAL -- Ethics. Sociology Social sciences Social psychology Social control National health services Medical care Humanities Human rights Genetics -- Technique Genetic screening Diagnostic services Diagnosis Confidential communications Civil rights Bioethics Human genetics -- Moral and ethical aspects Form Electronic book Author Kaan, Terry, editor Ho, W. Calvin, editor ISBN 9781783263066 1783263067

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