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Title Challenges and opportunities in using residual newborn screening samples for translational research : workshop summary / Steve Olson and Adam C. Berger, rapporteurs ; Roundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy, Institute of Medicine of the National Academies
Published Washington, D.C. : National Academies Press, ©2010


Description 1 online resource (xv, 67 pages) : illustrations
Contents Newborn screening as a public health program -- Uses of residual newborn screening samples in research -- Concerns about the use of residual newborn screening samples -- Review and consent in the use of residual newborn screening samples -- Parental and public education -- Workshop overview and wrap-up
Summary "Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research."
Bibliography Includes bibliographical references
Notes Print version record
Subject Neonatology -- Research -- Moral and ethical aspects
Newborn infants -- Diseases -- Diagnosis.
Newborn screening.
Newborn infants.
Public health.
Neonatal Screening
Genetic Diseases, Inborn -- diagnosis
Neonatal Screening -- ethics
Biomedical Research -- ethics
Translational Research, Biomedical -- ethics
Translational Research, Biomedical
Blood Chemical Analysis -- ethics
Infant, Newborn
Blood Specimen Collection -- ethics
Public Health
Bioethical Issues
public health.
MEDICAL -- Pediatrics.
HEALTH & FITNESS -- Children's Health.
Public health
Newborn screening
Newborn infants
Newborn infants -- Diseases -- Diagnosis
United States
Form Electronic book
Author Olson, Steve, 1956-
Berger, Adam C
Institute of Medicine (U.S.). Roundtable on Translating Genomic-Based Research for Health.
Institute of Medicine (U.S.)
ISBN 9780309159555