Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton -- Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby -- Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer -- Abandoning informed consent : the case of genetic research in population collections / Jane Kaye -- Children's participation in genetic epidemiology : consent and control / Emma Williamson [and others] -- 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon -- Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis
Summary
Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for and policy debates about genetic databases
