Learn about me. Diagnosis and first contact with a hospital -- We need to communicate. We need to communicate ; Writing to people ; Telephoning ; Talking to people -- Tell them about me. The care book ; Diaries ; Information sheets ; Medication -- My changing needs. In nursery, school or centre ; Respite and residential services ; Independent living arrangements ; Wheelchairs ; Mobility, equipment and adaptations ; Benefits -- Doctors and hospitals. Your GP ; In casualty ; In hospital ; Things can only get better -- Making my life worthwhile. Leisure activities ; Families and friends ; The future -- wills, trusts and gardians -- Conclusion. Who cares for the carers?
Summary
Written for parents, carers and professionals who have responsibilities for people with profound intellectual and multiple disabilities, Listen to Me is a practical guide to coping with the complex problems of someone with this level of disability, asserting their rights, interpreting their needs successfully, and maintaining effective contact with all the professionals and organisations who deal with them. Using examples from the author's experience with her own daughter, each chapter deals with communicating the person's rights and needs in particular situations. It is shown how it is possible to enrich the individual's experience and ensure that others value him or her as a distinct individual with a right to a meaningful life
