| Description |
xx, 690 pages ; 24 cm |
| Contents |
1. Introduction -- 2. Patterns of Childhood Death in America -- 3. Pathways to a Child's Death -- 4. Communication, Goal Setting, and Care Planning -- 5. Care and Caring from Diagnosis Through Death and Bereavement -- 6. Providing, Organizing, and Improving Care -- 7. Financing of Palliative and End-of-Life Care for Children and their Families -- 8. Ethical and Legal Issues -- 9. Educating Health Care Professionals -- 10. Directions for Research -- App. A. Study Origins and Activities -- App. B. Prognostication Scores -- App. C. Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents -- App. D. Cultural Dimensions of Care At Life's End for Children and Their Families -- App. E. Bereavement Experiences After the Death of a Child -- App. F. End-of-Life Care in Emergency Medical Services for Children -- App. G. Education in Pediatric Palliative Care -- App. H. Progress in Pediatric Palliative Care in New York State - A Demonstration Project |
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App. I. Committee Biographical Statements |
| Summary |
"When Children Die examines what we know about the needs of these children and their families, the extent to which such needs are - and are not - being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, strengthening the organization and delivery of services, reducing financial barriers to care, developing support programs for bereaved families, training health professionals, expanding the knowledge base to guide clinicians and families, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not - and will likewise help all families who suffer with their seriously ill or injured child." "Featuring illustrative cases, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury."--BOOK JACKET |
| Notes |
Title from title screen (viewed 03/06/2003) |
| Bibliography |
Includes bibliographical references and index |
| Notes |
Print version record |
| Subject |
Terminally ill children -- Care.
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Terminally ill children -- Family relationships.
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Palliative treatment.
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Terminal Care.
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Child.
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Health Policy.
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Patient Participation.
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Professional-Family Relations.
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Terminal Care -- economics.
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Terminal Care -- legislation & jurisprudence.
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Child.
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| SUBJECT |
United States. https://id.nlm.nih.gov/mesh/D014481 |
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United States. https://id.nlm.nih.gov/mesh/D014481 |
| Author |
Field, Marilyn J. (Marilyn Jane)
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Behrman, Richard E., 1931-
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Institute of Medicine (U.S.). Committee on Palliative and End-of-Life Care for Children and Their Families.
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| LC no. |
2002014542 |
| ISBN |
0309084377 hardcover |
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