| Description |
80 pages ; 25 cm |
| Contents |
Chapter 1. The special nature of genetic information -- 1.1. Some basic genetics -- 1.2. Genetic disorders -- 1.3. Genetic material, genetic tests and genetic information -- 1.4. The shared nature of genetic information -- 1.5. The uniquely personal and identifying nature of genetic information -- 1.6. The possibility of predicting future disease/health risks -- 1.7. The probabilistic nature of genetic information -- 1.8. The potential for misuse of genetic information -- 1.9. 'Geneticisation' -- ch. 2. Genetic testing and the storage of genetic material/information -- 2.1. Types of genetic test -- 2.2. Other times when tests are performed -- 2.3. The test material -- 2.4. Performance of the test -- 2.5. Test quality -- 2.6. Test cost -- 2.7. Storage of genetic information and genetic material -- 2.8. Equity of access to genetic testing -- 2.9. Commercialisation and direct marketing of genetic tests -- 2.10. Allocation of resources for genetic testing -- ch. 3. Consent to genetic testing -- 3.1. The setting in which genetic testing takes place -- 3.2. Some counselling issues -- 3.3. The information -- 3.4. Consent -- ch. 4. Privacy and confidentiality -- 4.1. Introduction -- 4.2. Storage of genetic information -- 4.3. Individual privacy and confidentiality -- 4.4. Individual privacy and the family -- 4.5. The right not to know -- ch. 5. Disclosure of genetic information -- 5.1. Stigmatisation and discrimination within society -- 5.2. Possible uses of genetic information which could harm individuals -- 5.3. Psychological difficulties -- 5.4. A possible consequence of concern about discrimination |
| Summary |
This document discusses ethical issues relating to human genetic testing. It is intended primarily for health professionals and researchers who are involved in the testing process or who refer people for testing. It will also assist others to understand the ethical and practical issues associated with genetic testing and, because a wide audience is expected to read the document, some introductory material on genetic testing has been included as background to the ethical issues. It deals principally with operational issues related to current practice, such as obtaining consent, counselling, privacy and confidentiality. In general, it does not attempt to discuss broader moral and philosophical issues, although these are recognised as being important. Criteria for developing or prioritising genetic tests, or laboratory standards for delivering tests of high quality, are not addressed |
| Notes |
"February 2000" --title page |
|
"Issued by the National Health and Medical Research Council in accordance with the National Health and Medical Research Act, 1992 (Cth)" -- title page |
| Bibliography |
Includes bibliographical references (pages 59-62) |
| Notes |
Also available online via the World Wide Web |
|
MODE OF ACCESS: Available via the Web catalogue |
|
Commonwealth of Australia 2000 |
| Subject |
Genetic engineering -- Moral and ethical aspects -- Australia.
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Genetic engineering -- Moral and ethical aspects.
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Genetic screening -- Moral and ethical aspects -- Australia.
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Genetic screening -- Moral and ethical aspects.
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Genetic screening.
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Human chromosome abnormalities -- Diagnosis -- Moral and ethical aspects.
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Human chromosome abnormalities -- Diagnosis.
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Human chromosome abnormalities.
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Human genetics -- Moral and ethical aspects -- Australia.
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Human genetics -- Moral and ethical aspects.
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Medical ethics -- Australia.
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Medicine -- Research -- Moral and ethical aspects -- Australia.
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Ethics, Medical.
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Genetic Testing.
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Ethics, Medical.
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Genetic Testing.
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| SUBJECT |
Australia. https://id.nlm.nih.gov/mesh/D001315 |
| Author |
National Health and Medical Research Council (Australia)
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| LC no. |
00002140 |
| ISBN |
1864960566 (paperback) |
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