Description |
xxiii, 666 pages ; 26 cm |
Contents |
Machine derived contents note: CHAPTER 1 The Human Genome: Pathways to Health 1 -- I. Scientific Discovery and Advancement 1 -- A. Mendel and How Genetics Began 1 -- B. More than 50 Years after Watson and Crick 2 -- C. Decoding the Structure of Life: Mapping the Human Genome 5 -- D. From Genomics to Proteomics 10 -- II. The Role of Genomics in Understanding Health and Dis- -- ease 13 -- A. Genetic Testing and Screening 14 -- B. Pharmacogenomics 28 -- C. Gene Therapy: Germline v. Somatic Cell Interventions 32 -- D. Genetic Enhancement: Selection of Desired Traits 38 -- III. Moral Principles and Ethical Theories 45 -- IV. Science Policy and Regulation: Competition or Control? 56 -- A. The Problem of Patenting: Who Owns DNA? 57 -- B. The Problem of Commercialization: Mining and Harvesting -- DNA 62 -- C. Regulating Science and Medicine 66 -- V. Genetics and Society: Ethical, Legal, and Social Implica- -- tions 77 -- A. Genetics Exceptionalism 77 -- B. Genetic Privacy and the Disclosure of Genetic Information 82 -- C. Stratification, Justice, and Opportunity 98 -- VI. Conclusion 111 -- CHAPTER 2 Private Control of Science and Medicine 112 -- I. Professionals and Their Organizations and Institutions 112 -- A. What Is a Profession? 112 -- B. Establishing Norms and Standards of Conduct 117 -- II. Patients, Subjects and Citizens 130 -- A. What Control Can Individuals Exercise? 130 -- B. What Limitations Should Be Placed on Individual Choice? 155 -- C. What Matters Require Collective Action-and How? 196 -- CHAPTER 3 The Human Body 208 -- I. Ownership of the Body 208 -- A. Who Owns the Body and Its Parts? 208 -- B. The Body as Commodity: When Body Parts Are to Be Trans- -- planted 222 -- C. The Relationship Between Body and Human Being 243 -- II. Humans as Research Subjects 259 -- A. Overview 259 -- B. A History of Experimental Abuses 266 -- C. Evolution of Public Regulation of Human Experimentation 292 -- D. Assessment of Current Regulations 318 -- E. Protecting the Most Vulnerable Subjects 342 -- CHAPTER 4 Death and Dying 370 -- I. Defining Death 370 -- II. Dying With Dignity 385 -- A. Dying in the Twenty-First Century 385 -- B. Is There a Constitutional Right to Die? 395 -- C. Competent Patients 411 -- D. The Incompetent Patient 456 -- CHAPTER 5 Reproduction and the New Genetics 509 -- I. Defining Life 509 -- II. Deciding Whether, When, or How to Reproduce 528 -- A. Who Decides? 528 -- B. Aiding Reproduction 559 -- C. Obligations to Fetuses and Future Children 616 |
Bibliography |
Includes bibliographical references and index |
Subject |
Medical ethics -- United States.
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Medical laws and legislation -- United States.
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Medicine -- Research -- Law and legislation -- United States.
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Medicine -- Research -- Moral and ethical aspects -- United States.
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Author |
Areen, Judith, 1944-
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Gostin, Lawrence O. (Lawrence Ogalthorpe)
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LC no. |
2005284281 |
ISBN |
1587789124 (alk. paper) |
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