1. Introduction -- 2. Assessment -- 3. Promoting Adaptation: The Child's Experience -- 4. Promoting Adaptation: The Experience of Parents, Siblings and Families -- 5. Managing Procedural Distress -- 6. Assessing and Treating Chronic Pain and Medically Unexplained Symptoms -- 7. Promoting Adherence to Treatment -- 8. Education, School and Peer Relationships -- 9. Empowering Young People: Involvement in Decision Making and Developing Health Care Services -- 10. Transition to Adult Services -- 11. Palliative Care and Bereavement -- 12. Staff Support and Caring for the Carers -- 13. Concluding Remarks -- Appendix 1: Web Resources -- Appendix 2: Books for Children, Adolescents and Young People
Summary
Living with a chronic illness can have a significant psychological impact on a child and his or her family, and it is essential that this aspect of their care is not overlooked. This book provides a comprehensive guide to promoting the psychological well-being of children with chronic illnesses and medical conditions, covering support within health, social services and education. It discusses issues such as the impact of diagnosis and the experiences of children and their families in managing their medical condition and treatment. Strategies to support children and help them to cope with medic