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Title Genetic databases : socio-ethical issues in the collection and use of DNA / edited by Richard Tutton and Oonagh Corrigan
Published London ; New York : Routledge, 2004
Online access available from:
ProQuest Ebook Central (Limited concurrent users)    View Resource Record  


Description 1 online resource (viii, 211 pages)
Contents Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton -- Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby -- Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer -- Abandoning informed consent : the case of genetic research in population collections / Jane Kaye -- Children's participation in genetic epidemiology : consent and control / Emma Williamson [and others] -- 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon -- Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis
Summary Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for and policy debates about genetic databases
Bibliography Includes bibliographical references and index
Notes Print version record
Subject DNA.
Nucleotide sequence -- Databases
Amino acid sequence -- Databases
Genetics -- Data processing
Databases -- Citizen participation
Medical ethics.
Computational biology.
SCIENCE -- Philosophy & Social Aspects.
Computational biology.
Amino acid sequence.
Genetics -- Data processing.
Medical ethics.
Nucleotide sequence.
Genre/Form Databases.
Form Electronic book
Author Corrigan, Oonagh, 1957-
Tutton, Richard, 1972-
ISBN 0203577922