Limit search to available items
Book Cover
E-book
Author Gengler, Amanda M., author

Title "Save my kid" : how families of critically ill children cope, hope, and negotiate an unequal healthcare system Amanda M. Gengler
Published New York : New York University Press, 2020

Copies

Description 1 online resource (241 pages)
Contents Cover -- Title -- Copyright -- Dedication -- Contents -- Preface -- Part I: Families in Crisis. 1. Hope is a thing with feathers -- 2. Studying families of critically ill children --Part II: Unequal illnesses.3. Care-captaining: climbing the rungs of the US healthcare system -- 4. Care-entrusting: staying on the medical sidelines -- 5. Blending and switching care strategies: finding emotional equilibrium -- Part III: Tangled Up in Hope.6. When everything is not enough -- 7. The fragility and tenacity of hope -- 8. Emotionally perilous paths: illness management, emotion management, and the production of healthcare inequalities -- Acknowledgments -- Appendix A: Doing fieldwork in emotionally fraught settings: a brief reflection -- Appendix B: Family and physician demographics -- Notes -- References -- Index -- About the Author
Summary A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals--deeply rooted in the culture of illness and medicine--play in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake
Bibliography Includes bibliographical references and index
Notes Print version record
Subject Critically ill children -- Medical care -- United States
Parents of terminally ill children -- Psychology
Catastrophic illness -- Social aspects -- United States
Child health services -- United States.
Health services accessibility -- United States
Health services accessibility.
Children.
Health Services Accessibility
Critical Illness
Child
children (people by age group)
SOCIAL SCIENCE / Children's Studies.
Children
Catastrophic illness -- Social aspects
Child health services
Health services accessibility
Parents of terminally ill children -- Psychology
Ungerechtigkeit
Krankheit
Kind
Gesundheitswesen
Eltern
Enfants malades en phase terminale -- Soins médicaux -- États-Unis.
Enfants malades en phase terminale -- Famille -- États-Unis.
Enfants -- Services de santé -- États-Unis.
SUBJECT United States https://id.nlm.nih.gov/mesh/D014481
Subject United States
USA
Form Electronic book
ISBN 1479834327
9781479834327
Other Titles Save my kid