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Author McHaffie, Hazel.

Title Crucial decisions at the beginning of life : parents' experiences of treatment withdrawal from infants / Hazel E. McHaffie in association with Peter W. Fowlie ... [and others] ; foreword by David Harvey
Published Abingdon : Radcliffe Medical Press, [2001]


Location Call no. Vol. Availability
 MELB  155.937085 Mch/Cda  AVAILABLE
Description xviii, 440 pages : illustrations ; 25 cm
Contents Introduction--Parental Grief--The study method--The respondent families--Pregnancy and birth (pregnancy up to the onset of labour - The labour and delivery--When things went wrong--Decision making--Management of dying--The Funeral--Follow up--The effect on death on the family--Support in bereavement--Parents' opinions--Some concluding thoughts-Recommendation--Appendix One: Data on non-respondent families--References
Summary BMA Medical Book Of The Year. This is a unique and valuable work, which traces the experiences of over 100 parents who have lived through the loss of a baby. It follows them from pregnancy through to13 months after the death. Based on rigorous scientific research it describes their feelings when crucial decisions are made on behalf of their child, and examines their capacity to take responsibility for such decisions. By analysing those factors which help or hinder them, the book provides guidance to health professionals on how the services they offer may be improved. Neonatologists, paediatricians, midwives and neonatal nurses will find it an essential and enlightening read. Primary care clinicians, intensive care staff and hospital chaplains will discover insights which help them to support a wider group of patients and relatives. 'This is an important book. It recounts the experiences of families whose babies died or were involved in the withdrawal of medical treatment. What the parents have to say is very revealing and demonstrates how easy it is to make mistakes in their care. Their comments are instructive and will help us in the care of other families. We must aim to give faultless care, but need to recognise that we often fall short of our aim. The parents who recounted the events in these interviews are excellent teachers in showing us where it is easy to go wrong' From the Foreword by David Harvey
Notes Romanized
Bibliography Includes bibliographical references (pages [417]-427) and index
Subject Bereavement.
Infants -- Death.
Infants -- Diseases -- Treatment -- Decision making.
Infants -- Mortality.
Euthanasia, Passive -- psychology.
Parents -- psychology.
Infant, Newborn, Diseases -- therapy.
Infant, Newborn.
Medical Futility.
Parent-Child Relations.
Social Support.
Decision Making.
Ethics, Clinical.
Ethics, Medical.
Euthanasia, Passive -- psychology.
Euthanasia, Passive.
Infant, Newborn -- mortality
Intensive Care, Neonatal -- psychology.
Parents -- psychology.
Professional-Family Relations.
Withholding Treatment.
Author Fowlie, Peter W.
LC no. sa 64001850
ISBN 1857754794 (paperback)