Introduction -- Subjectivisation as theoretical framework -- Methodology -- Genes in the womb -- Coming into being -- New conditions for the sciences of life -- ELSA as a heritage of public controversies -- Public accountability of newborn screening -- Ethical boundary work -- Subjectivisation of bioscientists -- Science, politics, and the public -- Constituting oneself as a researcher -- Negotiating who ELSA researchers are -- Methodological challenges -- Why science policy context matters
Summary
Understanding the significance of genetic factors for our lives requires an analysis that goes beyond biological aspects. It is especially necessary to take into account how human beings relate to others and to themselves. Who we are is a result of social action and the ways in which human beings constitute themselves as subjects. Seen from this perspective, genetic medicine is a social practice that shapes how we think about us, how we conduct our behavior and how we care for our children. This book scrutinizes practices by which individuals become knowledgeable about their genes and constitute them as responsible decision makers
