| Description |
1 online resource (xi, 235 pages) |
| Series |
Cambridge law, medicine, and ethics |
|
Cambridge law, medicine, and ethics.
|
| Contents |
The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange |
| Summary |
This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information |
| Bibliography |
Includes bibliographical references (pages 214-228) and index |
| Notes |
Print version record |
| Subject |
Genetic screening -- Government policy.
|
|
Genetic screening -- Moral and ethical aspects.
|
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Medical records -- Access control.
|
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Privacy, Right of.
|
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Genetic Privacy -- ethics.
|
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Decision Making -- ethics.
|
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Genetic Privacy -- legislation & jurisprudence.
|
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Public Policy.
|
| Form |
Electronic book
|
| Author |
Mullen, Caroline.
|
|
Widdows, Heather, 1972-
|
| ISBN |
051163482X (electronic bk.) |
|
9780511634826 (electronic bk.) |
|
9780511635274 |
|
