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Title The moral, social, and commercial imperatives of genetic testing and screening : the Australian case / edited by Michaela Betta
Published Dordrecht ; [Great Britain] : Springer, ©2006


Description 1 online resource (xv, 268 pages)
Series International library of ethics, law, and the new medicine ; v. 30
International library of ethics, law, and the new medicine ; v. 30.
Contents From destiny to freedom? : on human nature and liberal eugenics in the age of genetic manipulation / Michela Betta -- Diagnostic knowledge in the genetic economy and commerce / Michela Betta -- Body talk : genetic screening as a device of crime regulation / Richard Hil, Richard Hindmarsh -- Genetic testing and human genetic databases / Astrid H. Gesche -- The imperative of the "new genetics" : challenges for ethics, law, and social policy / David Weisbrot -- Insurance and genetics : regulating a private market in the public interest / David Weisbrot, Brian Opeskin -- The social imperative for community genetic screening : an Australian perspective / MaryAnne Aitken, Sylvia Metcalfe -- Genetically transformed healthcare : healthy children and parents / Enzo A. Palombo, Mrinal Bhave -- The Australian law reform inquiry into genetic commission testing -- a worker's perspective / Susan Pennicuik -- Genetic information and the Australian labour movement / Suzanne Jamieson -- Protecting the vulnerable : genetic testing and screening for parentage, immigration, and aboriginality / Astrid H. Gesche -- Essentially whose? : genetic testing and the ownership of genetic information / Lyn Turney -- Self-knowledge and self-care in the age of genetic manipulation / Michela Betta
Summary This is a dynamic book that successfully combines global and local thinking with regard to an emerging technology that will contribute to the expansion of proteomics and pharmacogenomics, the science of tailored healthcare and treatments. Genetic testing and screening will change the way people understand health, diagnostic knowledge, illness but also crime, databases and private information, paternity, and self-knowledge. In addition to giving individuals the opportunity to think differently about their well-being, it installs a new taxonomy in terms of illness, because its probabilistic effects will introduce a new narrative in the health discourse of 21st century society. While in the past people could be classified as being healthy or sick, now, through genetic testing and screening, adults can be classified as being healthy, predisposed to an illness, probably at risk, at risk, or carriers of certain risks. The effects of this taxonomy do not remain confined to the individual who is tested but extends to an entire family, as genetic knowledge is family knowledge. But the technology of genetic testing and screening installs a second dramatic register in the prenatal phase when cells and embryos are tested and subsequently altered in order to hit targets of perfection. However, this technology can also be seen as a strategy for the acquisition of new knowledge about oneself, as it instigates a different attitude towards ourselves in a scenario in which the notion of life as a singular noun is seriously questioned by cultural practices that make it necessary to speak of forms of life. The complexity of the Self resulting from this epistemological shift evoke the ancient Greco-roman practices of the care of the self leading to self-knowledge. Genetic testing and screening could therefore be understood as a form of self-quest, and attempt to discover what we are beyond our wishes and desires - beyond what we would like to be
Bibliography Includes bibliographical references and index
Notes Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. MiAaHDL
Print version record
digitized 2011 HathiTrust Digital Library committed to preserve pda MiAaHDL
Subject Genetic screening -- Moral and ethical aspects -- Australia
Genetic screening -- Social aspects -- Australia
Genetic screening -- Economic aspects -- Australia
Human chromosome abnormalities -- Diagnosis -- Social aspects -- Australia
Diagnostic services.
Confidential communications.
Genetics -- Technique.
National health services.
Civil rights.
Social psychology.
Human rights.
Social control.
Information storage and retrieval systems.
Medical informatics.
Medicine -- Data processing.
Medical care.
Social sciences.
Genetic screening.
Diagnostic Services
Diagnostic Techniques and Procedures
Genetic Techniques
Databases, Factual
Geographic Locations
Genetic Services
Health Services
Patient Rights
Civil Rights
Databases as Topic
Psychology, Social
Investigative Techniques
Preventive Health Services
Human Rights
Information Storage and Retrieval
Social Control, Formal
Analytical, Diagnostic and Therapeutic Techniques and Equipment
Community Health Services
Information Systems
Health Care Facilities, Manpower, and Services
Behavior and Behavior Mechanisms
Information Science
Medical Informatics Applications
Delivery of Health Care
Psychiatry and Psychology
Health Care Economics and Organizations
Social Sciences
Medical Informatics
Anthropology, Education, Sociology and Social Phenomena
Genetic Testing
Genetic Privacy
Databases, Genetic
State Medicine
Patient Care
civil rights.
social psychology.
information retrieval services.
information storage.
social sciences.
HEALTH & FITNESS -- Diseases -- Genetic.
Genetic screening -- Social aspects -- Australia.
Genetic screening -- Economic aspects -- Australia.
Human chromosome abnormalities -- Diagnosis -- Social aspects -- Australia.
Genetic Screening -- ethics -- Australia.
Databases, Genetic -- Australia.
Genetic Privacy -- Australia.
Genetic screening -- Moral and ethical aspects -- Australia.
Sciences de la vie.
Social sciences
Social psychology
Social control
National health services
Medicine -- Data processing
Medical informatics
Medical care
Information storage and retrieval systems
Human rights
Genetics -- Technique
Genetic screening
Diagnostic services
Confidential communications
Civil rights
Genetic screening -- Moral and ethical aspects
Genetic screening -- Social aspects
Human chromosome abnormalities -- Diagnosis -- Social aspects
Form Electronic book
Author Betta, Michela, 1960-
ISBN 9781402046193