Book Cover; Title; Copyright; Contents; Foreword; Preface; Acknowledgments; Introduction; Part I Searching for answers; 1 Anew door opening; 2 Destination unknown; Part II Coming to terms with devastating prognoses; 3 Controlling destiny; 4 Dream of a new life; Part III Caregivers; 5 Maintaining hope and independence in the face of despair; 6 The neurologists' conundrum; Final reflections; Notes; Bibliography; Index
Summary
Explores the diverse meanings and impacts of genetic diagnoses for patients enduring incurable, ultimately fatal neurodegenerative diseases - and for their family caregivers and clinicians
