Title The moral, social, and commercial imperatives of genetic testing and screening : the Australian case / edited by Michaela Betta

Published Dordrecht ; [Great Britain] : Springer, ©2006

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Description 1 online resource (xv, 268 pages) Series International library of ethics, law, and the new medicine ; v. 30 International library of ethics, law, and the new medicine ; v. 30. Contents From destiny to freedom? : on human nature and liberal eugenics in the age of genetic manipulation / Michela Betta -- Diagnostic knowledge in the genetic economy and commerce / Michela Betta -- Body talk : genetic screening as a device of crime regulation / Richard Hil, Richard Hindmarsh -- Genetic testing and human genetic databases / Astrid H. Gesche -- The imperative of the "new genetics" : challenges for ethics, law, and social policy / David Weisbrot -- Insurance and genetics : regulating a private market in the public interest / David Weisbrot, Brian Opeskin -- The social imperative for community genetic screening : an Australian perspective / MaryAnne Aitken, Sylvia Metcalfe -- Genetically transformed healthcare : healthy children and parents / Enzo A. Palombo, Mrinal Bhave -- The Australian law reform inquiry into genetic commission testing -- a worker's perspective / Susan Pennicuik -- Genetic information and the Australian labour movement / Suzanne Jamieson -- Protecting the vulnerable : genetic testing and screening for parentage, immigration, and aboriginality / Astrid H. Gesche -- Essentially whose? : genetic testing and the ownership of genetic information / Lyn Turney -- Self-knowledge and self-care in the age of genetic manipulation / Michela Betta Summary This is a dynamic book that successfully combines global and local thinking with regard to an emerging technology that will contribute to the expansion of proteomics and pharmacogenomics, the science of tailored healthcare and treatments. Genetic testing and screening will change the way people understand health, diagnostic knowledge, illness but also crime, databases and private information, paternity, and self-knowledge. In addition to giving individuals the opportunity to think differently about their well-being, it installs a new taxonomy in terms of illness, because its probabilistic effects will introduce a new narrative in the health discourse of 21st century society. While in the past people could be classified as being healthy or sick, now, through genetic testing and screening, adults can be classified as being healthy, predisposed to an illness, probably at risk, at risk, or carriers of certain risks. The effects of this taxonomy do not remain confined to the individual who is tested but extends to an entire family, as genetic knowledge is family knowledge. But the technology of genetic testing and screening installs a second dramatic register in the prenatal phase when cells and embryos are tested and subsequently altered in order to hit targets of perfection. However, this technology can also be seen as a strategy for the acquisition of new knowledge about oneself, as it instigates a different attitude towards ourselves in a scenario in which the notion of life as a singular noun is seriously questioned by cultural practices that make it necessary to speak of forms of life. The complexity of the Self resulting from this epistemological shift evoke the ancient Greco-roman practices of the care of the self leading to self-knowledge. Genetic testing and screening could therefore be understood as a form of self-quest, and attempt to discover what we are beyond our wishes and desires - beyond what we would like to be Bibliography Includes bibliographical references and index Notes Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. http://purl.oclc.org/DLF/benchrepro0212 MiAaHDL English Print version record digitized 2011 HathiTrust Digital Library committed to preserve pda MiAaHDL Subject Genetic screening -- Moral and ethical aspects -- Australia Genetic screening -- Social aspects -- Australia Genetic screening -- Economic aspects -- Australia Human chromosome abnormalities -- Diagnosis -- Social aspects -- Australia Diagnostic services. Confidential communications. Genetics -- Technique. National health services. Diagnosis. Civil rights. Social psychology. Human rights. Social control. Information storage and retrieval systems. Sociology. Medical informatics. Medicine -- Data processing. Medical care. Social sciences. Genetic screening. Diagnostic Services Confidentiality Diagnostic Techniques and Procedures Genetic Techniques Databases, Factual Geographic Locations Morals Privacy Genetic Services Jurisprudence Health Services Diagnosis Patient Rights Civil Rights Databases as Topic Psychology, Social Investigative Techniques Geographicals Preventive Health Services Human Rights Information Storage and Retrieval Social Control, Formal Analytical, Diagnostic and Therapeutic Techniques and Equipment Community Health Services Information Systems Health Care Facilities, Manpower, and Services Behavior and Behavior Mechanisms Sociology Information Science Medical Informatics Applications Delivery of Health Care Psychiatry and Psychology Health Care Economics and Organizations Social Sciences Medical Informatics Anthropology, Education, Sociology and Social Phenomena Genetic Testing Genetic Privacy Databases, Genetic Ethics State Medicine Patient Care diagnosis. civil rights. social psychology. information retrieval services. information storage. sociology. social sciences. HEALTH & FITNESS -- Diseases -- Genetic. Genetic screening -- Social aspects -- Australia. Genetic screening -- Economic aspects -- Australia. Human chromosome abnormalities -- Diagnosis -- Social aspects -- Australia. Genetic Screening -- ethics -- Australia. Databases, Genetic -- Australia. Genetic Privacy -- Australia. Genetic screening -- Moral and ethical aspects -- Australia. Biomédecine. Sciences de la vie. Sociology Social sciences Social psychology Social control National health services Medicine -- Data processing Medical informatics Medical care Information storage and retrieval systems Human rights Genetics -- Technique Genetic screening Diagnostic services Diagnosis Confidential communications Civil rights Genetic screening -- Moral and ethical aspects Genetic screening -- Social aspects Human chromosome abnormalities -- Diagnosis -- Social aspects Australia Australia Form Electronic book Author Betta, Michela, 1960- ISBN 9781402046193 1402046197 1402046189 9781402046186 1280935669 9781280935664 9786610935666 6610935661

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