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Book Cover
E-book
Author Harris, Anna (Medical anthropologist), author.

Title Cybergenetics : health genetics and new media / by Anna Harris, Susan Kelly, Sally Wyatt
Published Abingdon, Oxon ; New York, NY : Routledge, 2016
©2016

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Description 1 online resource (xvi, 157 pages) : illustrations
Series Genetics and Society
Genetics and Society
Contents Cover; Half Title; Title Page; Copyright Page; Dedication; Table of Contents; Acknowledgements; List of abbreviations and acronyms; 1 Introduction: CyberGenetics; Figure 1.1: Direct-to-consumer genetic testing; Box 1.1: Autobiology of a direct-to-consumer genetic testing user; Brief history of direct-to-consumer genetic testing; Brief history of the internet and health online; Intersecting determinisms: when genetic testing goes online; New spaces for health-e relations?; Changing relations of trust: in bodies, expertise, science and technology; Overview of book; Apple falls from the tree
Sharing gifts under the genetic family treeReciprocal ties; Spitting for free; Conclusion; References; 5 Controversy; Schizophrenia genetics; Controversy goes online; Selling genetic tests online for schizophrenia; Controversy in action: citation and production of knowledge; Conclusion; References; 6 Conclusion: CyberGenetic futures; Preventive measures; Letters from the lake; GenULuv announces entry to stock market; Online genetic testing: an archaeological assessment; References; Appendix A: New media, new genetics, new methods
Box A.1: Seven principles for doing research about emergent techno-scientific phenomenaMethodological choices made in preparation of this book; Finding material online: ethics of using self-reported data; Ontological issues of finding participants and defining 'users'; The internet is not the world: epistemological considerations of online research; Future directions; References; Appendix B: Direct-to-consumer genetic testing websites; Direct-to-consumer psychiatric-only genetic testing sites; General direct-to-consumer genetic testing sites with tests related to psychiatric conditions
Direct-to-consumer genetic testing sites not offering tests for psychiatric conditionsGenetic testing websites where it is not clear if it is direct-to-consumeror which diseases they test for; Reference; Index
Summary Online genetic testing services are increasingly being offered to consumers who are becoming exposed to, and knowledgeable about, new kinds of genetic technologies, as the launch of a 23andme genetic testing product in the UK testifies. Genetic research breakthroughs, cheek swabbing forensic pathologists and celebrities discovering their ancestral roots are littered throughout the North American, European and Australasian media landscapes. Genetic testing is now capturing the attention, and imagination, of hundreds of thousands of people who can not only buy genetic tests online, but can also go online to find relatives, share their results with strangers, sign up for personal DNA-based musical scores, and take part in research. This book critically examines this market of direct-to-consumer (DTC) genetic testing from a social science perspective, asking, what happens when genetics goes online?With a focus on genetic testing for disease, the book is about the new social arrangements which emerge when a traditionally clinical practice (genetic testing) is taken into new spaces (the internet). It examines the intersections of new genetics and new media by drawing from three different fields: internet studies; the sociology of health; and science and technology studies. While there has been a surge of research activity concerning DTC genetic testing, particularly in sociology, ethics and law, this is the first scholarly monograph on the topic, and the first book which brings together the social study of genetics and the social study of digital technologies. This book thus not only offers a new overview of this field, but also offers a unique contribution by attending to the digital, and by drawing upon empirical examples from our own research of DTC genetic testing websites (using online methods) and in-depth interviews in the United Kingdom with people using healthcare services
Bibliography Includes bibliographical references and index
References2 Users; Patients-in-waiting; Celebrity users; Non-celebrity users; Potential users and non-users; Conclusion; References; 3 Professionals; Genetic counselling online: co-production of users and technologies; Representations of genetic counselling by direct-to-consumer genetic testing companies; Models of genetic counselling provision; Genetic counselling roles; New roles for genetic counsellors; Conclusion; References; 4 Participation; The participatory turn?; Novel methods: the 'research-y' part of 23andMe; 23andMe's 'participatory culture'
Notes English
Online resource; title from PDF title page (Taylor & Francis, viewed August 17, 2018)
Subject Human chromosome abnormalities -- Diagnosis -- Computer network resources
Genetic screening -- Computer network resources
Genetic screening -- Social aspects
Internet.
Genetic screening.
Genetic Testing
Internet
Internet.
POLITICAL SCIENCE -- Public Policy -- Social Security.
POLITICAL SCIENCE -- Public Policy -- Social Services & Welfare.
Genetic screening
Genetic screening -- Social aspects
Internet
Form Electronic book
Author Kelly, Susan (Susan Elizabeth), author.
Wyatt, Sally, 1959- author.
ISBN 9781317368182
1317368185
9781317368175
1317368177
9781317368168
1317368169
9781315670799
1315670798
Other Titles Cyber genetics