Cover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research--A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; Index
Summary
Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks
