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Title Birth defects in India : epidemiology and public health implications / Anita Kar, editor
Published Singapore : Springer, 2021

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Description 1 online resource (377 pages)
Contents Intro -- Preface -- Acknowledgements -- Introduction: Birth Defects and Public Health in Low and Middle-Income Countries -- Contents -- Editor and Contributors -- Abbreviations -- List of Figures -- List of Tables -- List of Boxes -- Part I A Public Health Approach -- 1 Birth Defects: A Public Health Approach -- The Need for Birth Defects Services in LMICs -- Individual, Health and Social Welfare System Impact -- Magnitude of Congenital Anomalies -- Epidemiological Transition -- A Public Health Framework -- Birth Defect Surveillance -- Prevention of Birth Defects
Integrated medical and rehabilitation services -- Other Public Health Activities -- The World Health Assembly Resolution on Birth Defects -- India as an Example of a LMIC -- Socio-demographic and Health Indicators -- Socio-demographic Index and Epidemiological Transition -- Health System -- Maternal and Child Health Services -- References -- 2 Some Common Birth Defects -- Section I : Common Congenital Anomalies/Malformations -- Congenital Heart Defects -- Orofacial Clefts -- Spina Bifida and Neural Tube Defects -- Hydrocephalus, Macrocephaly, Microcephaly
Clubfoot (Congenital Talipes Equinovarus) -- Developmental Dysplasia of the Hip -- Congenital Limb Defects -- Polydactyly -- Section II : Developmental (Neuromotor) Disabilities -- Intellectual Disability -- Down Syndrome -- Attention-Deficit/Hyperactivity Disorder -- Autism Spectrum Disorders -- Cerebral Palsy -- Congenital Hearing Impairment -- Vision Impairment/Blindness -- Section III : Common Single Gene Disorders -- Hemoglobinopathies -- Hemophilia -- Muscular Dystrophy -- Achondroplasia -- Conclusion -- References
3 Thalidomide: Understanding the Responsibilities of a Birth Defects Service -- Thalidomide -- Thalidomide Distribution Across the World -- Thalidomide Embryopathy/Syndrome -- Health and Social Impact of Thalidomide -- Clinical Needs of Children -- Impact of Disability: Schooling -- Impact on Parents -- Health and Welfare Needs with Ageing -- The Response to the Thalidomide Tragedy -- Health and Social Sector Service Response -- Birth Defects Surveillance -- Drug Regulation -- Abortion Legislation -- Compensation and Economic Support -- Regulated Reintroduction of Thalidomide
Thalidomide in Developing Countries -- Lessons for a Birth Defects Service -- Zika Virus and the Public Health Response -- Congenital Zika Virus Syndrome -- Public Health Response -- Health System Challenges -- Impact on Families -- References -- Part II Surveillance, Registries and Magnitude -- 4 Birth Defects Surveillance in India -- Background -- Birth Defects Surveillance -- Birth Defects Surveillance: Factors Affecting Reporting of Prevalence Data -- Birth Defects Surveillance in LMICs -- Birth Defects Surveillance in India -- Summary and Conclusion -- References
Summary This book presents the epidemiology of birth defects and their public health and social implications in India. As neglected childhood disorders, birth defects remain invisible in global maternal and child health dialogues. Birth defects services are emerging in India. This book approaches birth defects from a public health perspective, identifying the core functions of a birth defects service. Keeping in mind the complex task of providing multidisciplinary services for children with disabilities and complex medical conditions, the book examines the basic public health activities that have been put in place to address these conditions in India. The book describes birth defects surveillance and the challenges of acquiring accurate and timely data on birth defects against the background of India's mixed health system. It discusses opportunities for prevention of birth defects and describes the structure and function of an emergent genetic service. It explores issues related to an integrated service for children with special healthcare needs, such as screening, early intervention, and rehabilitation. Furthermore, it describes the impact of these conditions on caregivers, including birth defects stigma. This book not only addresses a knowledge gap in the field of public health in India, but also explores the broader issues of services for children with disabilities and disabling conditions in low and low-middle income settings where access to health care is not universal. Given the depth and breadth of its coverage, the book offers an essential resource for birth defects researchers, researchers in the field of maternal and child health, public health/ global health, disability researchers, and researchers from the fields of rehabilitation sciences, nursing and anthropology. This book will be a valuable read for social medicine/community medicine departments, global health courses, and public health schools in India and other low middle-income countries
Notes 5 Rare Disease Registries: A Case Study of the Haemophilia Registry in India
Online resource; title from PDF title page (SpringerLink, viewed July 28, 2021)
Subject Abnormalities, Human -- India -- Epidemiology
Public health.
Public Health
public health.
Abnormalities, Human -- Epidemiology
Public health
Malformacions.
Naixement.
Neonatologia.
Epidemiologia.
Salut pública.
India
Índia.
Genre/Form Llibres electrònics.
Form Electronic book
Author Kar, Anita, editor
ISBN 9789811615542
9811615543