The Emergence of Medical Information in the Face of Personal and Societal Ethical Challenges / Jérôme Béranger -- Ethical Modeling: From the Design to the Use of an Information System / Jérôme Béranger -- Uses of this Ethical Model / Jérôme Béranger -- Ethics-Oriented Personalized Medicine / Jérôme Béranger -- Conclusions -- Appendix 1: Classification of the Justifications in Terms of the Different Real-World Environmental Parameters and Fundamental Ethical Principles Pertaining to the Major Objectives of an IS in Healthcare -- Appendix 2: Questionnaire 1: Designed to Analyze the Perception of Actors in Oncology about the Primary Objectives of an IS in Healthcare -- Appendix 3: Questionnaire 1: Designed to Analyze Healthcare Users' Perceptions of the Main Objectives of an IS in Healthcare -- Appendix 4: Questionnaire 2: Designed to Study the Realization and Characteristics of the IS Tool, to be used by the Designer of the IS and to the "Internal" Users -- Appendix 5: Questionnaire 3: Designed to Analyze the Methods and Tools Put in Place to Enable the IS to Work -- Appendix 6: Environmental Parameters of the Knowledge Pyramid
Summary
The exponential digitization of medical data has led to a transformation of the practice of medicine. This change notably raises a new complexity of issues surrounding health IT. The proper use of these communication tools, such as telemedicine, e-health, m-health the big medical data, should improve the quality of monitoring and care of patients for an information system to "human face". Faced with these challenges, the author analyses in an ethical angle the patient-physician relationship, sharing, transmission and storage of medical information, setting pins to an ethic for the digitization of medical information. Drawing on good practice recommendations closely associated with values, this model is developing tools for reflection and present the keys to understanding the decision-making issues that reflect both the technological constraints and the complex nature of human reality in medicine
