Limit search to available items
Book Cover
Author Informed Consent and Health Literacy (Workshop) (2014 : Washington, D.C.)

Title Informed consent and health literacy : workshop summary / Joe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Institute of Medicine of the National Academies
Published Washington, D.C. : The National Academies Press, [2015]
Online access available from:
ProQuest Ebook Central Subscription    View Resource Record  


Description 1 online resource (192 pages) : color illustrations
Contents Introduction -- Overview of the key issues involved in informed consent -- The current state of informed consent in research and treatment -- Approaches to informed consent -- The future of informed consent -- Reflections on the workshop -- References -- Appendix A: Workshop agenda -- Appendix B: Biographical sketches of workshop speakers and planning committee members -- Appendix C: Best practices and new models of health literacy for informed consent: Review of the impact of informed consent regulations on health-literate communications
Summary "Informed consent - the process of communication between a patient or research subject and a physician or researcher that results in the explicit agreement to undergo a specific medical intervention - is an ethical concept based on the principle that all patients and research subjects should understand and agree to the potential consequences of the clinical care they receive. Regulations that govern the attainment of informed consent for treatment and research are crucial to ensuring that medical care and research are conducted in an ethical manner and with the utmost respect for individual preferences and dignity. These regulations, however, often require - or are perceived to require - that informed consent documents and related materials contain language that is beyond the comprehension level of most patients and study participants. To explore what actions can be taken to help close the gap between what is required in the informed consent process and communicating it in a health-literate and meaningful manner to individuals, the Institute of Medicine's Roundtable on Health Literacy convened a one-day public workshop featuring presentations and discussions that examine the implications of health literacy for informed consent for both research involving human subjects and treatment of patients. Topics covered in this workshop included an overview of the ethical imperative to gain informed consent from patients and research participants, a review of the current state and best practices for informed consent in research and treatment, the connection between poor informed consent processes and minority underrepresentation in research, new approaches to informed consent that reflect principles of health literacy, and the future of informed consent in the treatment and research settings. Informed Consent and Health Literacy is the summary of the presentations and discussion of the workshop."--Publisher's description
Bibliography Includes bibliographical references
Notes Online resource; title from resource home page (National Academies Press, viewed March 19, 2015)
Subject Informed consent (Medical law) -- United States -- Congresses.
Patient education -- Congresses.
Health Literacy.
Informed Consent.
Patient Education as Topic.
United States.
Genre/Form Congress.
Conference papers and proceedings.
Conference papers and proceedings.
Form Electronic book
Author Alper, Joe, rapporteur
Institute of Medicine (U.S.). Board on Population Health and Public Health Practice, issuing body
Institute of Medicine (U.S.). Roundtable on Health Literacy, issuing body
ISBN 0309317282 (electronic bk.)
9780309317283 (electronic bk.)