CONTENTS -- PREFACE -- ACKNOWLEDGEMENTS -- Part One: PHYSICAL ASPECTS OF CYSTIC FIBROSIS -- INTRODUCTION -- What is CF? -- How is CF diagnosed? -- How did I get CF? -- What causes CF? -- Is there any way to find out who is a carrier of the CF gene? -- THERAPIES FOR THE RESPIRATORY SYSTEM -- Introduction -- Physiotherapy -- What does physiotherapy involve? -- What is school physiotherapy? -- What happens if I stop doing physiotherapy? -- Exercise -- Can I exercise instead of doing physiotherapy?
Is there anything I should know or do before I start an exercise program?Supplemental (extra) oxygen -- Antibiotics -- Do I need to take antibiotics? -- How are antibiotics taken? -- Anti-inflammatory agents -- Drugs to thin lung mucus -- Say NO to cough medicines -- Organ transplants -- THERAPIES FOR THE DIGESTIVE SYSTEM -- Introduction -- Enzyme replacement -- When should I take the enzymes? -- Why is the dosage of enzymes different from person to person? -- What happens if I don't take the enzymes and I need them?
What happens if I take too many enzymes?What if I feel uncomfortable taking enzymes in public? -- Movement of food through the large intestine (Gl motility) -- CF and weight control -- What sort of diet will help me gain weight? -- I think I'm overweight. Should I go on a weight-loss diet? -- What are jejunostomy and gastronomy tubes? -- Will having a jejunostomy or gastronomy tube interfere with any of my activities? -- What are the pros and cons of having a jejunostomy or gastronomy tube? -- NEW THERAPIES -- Other complications associated with CF
Intestinal obstructionDiabetes -- Liver disease -- Heat prostration (Heat collapse) -- Finger clubbing -- Barrel chest -- Pneumothorax -- Hemoptysis -- Cor pulmonale -- Heartburn -- Hospitalization and CF -- When does the doctor hospitalize someone with CF? -- Infection control and cepacia -- Common tests -- What has research discovered about CF? -- Part Two: PERSONAL ASPECTS OF CF -- INTRODUCTION -- Relationships -- Should I talk about CF? -- Who should I tell? -- When and how should I tell? -- Boyfriends/Girlfriends -- Relatives
Impact of CF on parentsSchool -- Should my teachers be told about CF? -- Who should tell them? -- What should I say? -- I'm afraid of getting behind in my school work if I'm hospitalized -- I'm nervous about going to high school. Is this normal? -- Can I participate in sports? -- Social activities -- Are cigarettes and marijuana harmful? -- Will alcohol affect someone with CF differently? -- Will my doctor tell my parents if I ask him/her about things like drugs and alcohol? -- Can someone with CF travel? -- Can someone with CF get a driver's licence?
Notes
Published by Carleton University Press for the Children's Hospital of Eastern Ontario
